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I just want to encourage you to keep close to the Lord through all this for He will keep you close to Him heart. Our God is faithful to guide us through every trial and show us the way when the path is hard to see and our eyes are dimmed by our tears. I say this through the experience of having two children with there own special needs. My oldest has Cerebral Palsy and is now 16, and my youngest has a learning disability and is now 13. Through all the trials, tears, and painful moments, when you feel you can’t go on is exactly the time we need to fall on our knees and pray for God strength to help us through the day. Andrew Justis
I am a Pediatric Cardiologist who takes care of children with Hypoplastic Left Heart Syndrome as well as many other Congenital Heart Diseases. I recently heard that your son as been diagnosed with HLHS while still in utero. I wanted to let you know that I will be praying for you and your family but also, I wanted to offer myself to any questions or concerns that you and your wife might have. You have probably been plugged in with a Pediatric Cardiologist already but sometimes just hearing from multiple sources can breing reassurance and comfort. I work at Brenner Children’s Hospital associated with Wake Forest Univeristy Baptist Medical Center in Winston Salem, North Carolina if you would like to look me up. I am an Interventional Pediatric Cardioloigt which means I primarily work in the catheterization lab treating children’s hearts. please feel free to contact me:) God bless and remember…God promises never to place more in your life than you and him can handle.
That is so nice! My son is 15 and has had 4 open heart surgeries. The last 3 have been at Brenner Children’s Hospital with the latest in April 2010. You guys are awesome there!!!
We are praying for you!!
Almost 40 years ago my wife when barely in our 20′s my wife and I gave birth to a little girl with a heart problem. Unfortunately at that time and in that hospital there was not the technology to know and be prepared ahead of time or to deal with it after she was born. We were not able to keep her. More, importantly however, through that experience and through my wife bout with cancer we learned two important lessons. One was to trust in God’s purposes–rather than trying to impose our plans on him. The second is that His grace is sufficient to help us deal with what ever his purposes are. I heard a story at our daughter’s funeral that has stayed with me the last 40 years. It is that life is like a tapestry. We see the bottom side with the knots and stray ends. Someday we will see the picture on the top side.
You played at RUSH camp a few days ago. When you gave the testimony about your son I started crying. I just wanted so badly to tell you that your son will be okay. For the past two years I’ve been really sick and we can’t figure out exactly what’s wrong. Through all the tests and ER visits and dead ends, I’ve become closer to my parents and a lot closer to God. It’s so painful and hard. Maybe more so for my parents than for me. But no matter how hard it gets I can’t help but see the beauty in what God’s doing with my life. It can be so scary but God is using my walk with Him and the strength that only He can give me to get through each day to reach those around me. When you walked off of the stage the other day, I tried to get your attention but you were too quick lol. My youth pastor’s wife told me about your website because I started crying when I tried to tell her how much I had wanted to reassure you about Bowen (Not your fault, I had just gotten some not-so-awesome news from my doctor). Don’t be afraid of what God has planned for your son. I promise his life will be beautiful and bring glory to God. Just be there to support him. My parents are one of the greatest gifts God has given me.
Would like to know how the family is doing.
I heard about your family and little bowen on joy fm here in florida, I too have a son with heart problems at 14 days old I stood by his bed and waited as the drs told me he would not make it another hour. But God had and still has a different plan. My son Nathan, whose name means gift from God, is now 14 years old and although we struggle every day with medications, he has a pacemaker/defibrulator and many other hurdles I would not change one thing that has happened. I thank God every day for the gift he gave me and the privlege of having him as my son! I pray for you guys as you go through this tough time and know that HE will bring you through this because you have trusted him completely.
I’m praying for you’r family and little bowen. my granddauther devin was born with the same thing. it’s called hypoplasty left heart syndrom. she had the norwood surgery which is done in three stages and all went well. god is a good. i fully believe in prayer it’s what saved my little granddaughter. she is now 4yrs old still has to see her doctor in oaklawn, il but she does well. so will bowen with gods grace.you’r in are prayers and thoughts always. jenny lietke from lockport,Il
I was painting a mural @church. It the was hallway of the childrens’s wing. It was a tough time for me as I knew I was coming up on the 24th anniversary of my son’s death. He lived to be 7 but spent his first week @Mott’s in Ann Arbor. I had just recently discovered Klove. As I heard about your son…it was as he being born. I dropped to my knees, paint brush in hand and cried..,take me, Lord…not another little boy. I don’t know these people, but I would give my life for this child. My son, Drew, died Nov,12,1986.
My prayers are with you and Bowen. I heard about little Bowen and got right on my computer to share this with you and your family. God has a plan for all; keep him close through your hard times. Please God heel little Bowen, this loved child needs you. Don’t ever leave God because through the hardest times he will be there for you. I hope everything goes as well as possible.
Dear Matt and Sarah,
My six year old grandaughter Aleska just had her final stage of the three operations for HPLH this month at Lucille Packard Children’s Hospital in Stanford, California. It was completely successful and she is healing well. In the process of the three surgeries, we lost her twice and she was brought back to us. It’s such a miracle that she is alive today. The Lord will pull you through with His mighty strength. I will tell my daughter about you all and see if she might contact you. A big Jesus hug to you all. Diane Paulson
God has a purpose for all this, all you have to do is to put your trust in the lord he will not let you down, he has a purpose for Bowen and God will use him in a big way you just have faith in him he will make a way. God bless the Hammits and may be giving them streinghth through this situation. I will be praying for Owen and his family.
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